About the patient surveys

We are involving patients in the study to obtain a comprehensive ‘picture’ to understand their quality of life at diagnosis and how this changes over a one and three year period. This will add depth to already available information in order to direct the education programme for the clinical teams.

Patients with bowel cancer being treated in participating hospitals will be asked to consent to participate in the collection of patient reported outcome measures (PROMS) via patient questionnaires. The data from the PROMS will be linked to the rest of the integrated dataset in the secure environment within NCRAS.  The study team will use the intelligence to identify clinical areas that could be improved and develop educational programmes to address them specific to the professional group of concern (e.g. pathologists, surgeons), and subsequently assess the impact of these educational interventions on the outcomes of bowel cancer patients in Yorkshire and Humber.